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HBA Support
Feb 63 min read
Exposing the gaps in care for hereditary brain aneurysms
HBA Support launches research reveals shocking gaps in screening and unequal care for people with hereditary brain aneurysms.
27 views
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HBA Support
Dec 2, 20243 min read
HBA Support Responds to NHS 10-Year Health Plan Consultation
HBA Support welcomes the opportunity to share our views on the NHS 10-Year Plan and how the NHS could better screen, support, and treat our
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HBA Support
Oct 16, 20242 min read
Have your voice heard: Have you ever had screening for brain aneurysms? Tell us your experiences.
Research Participation Opportunity: Have you ever had screening for brain aneurysms? Tell us your experiences.
470 views
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HBA Support
Oct 16, 20243 min read
Finding the Hidden Connection: Menopause and Brain Aneurysms: Our Pledge to build Greater Awareness and Research
After menopause women are 2.2 times more likely to develop aneurysms than men. We pledge to create greater awareness, research, and support.
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HBA Support
Sep 25, 20242 min read
Have your voice heard: What are the experiences of families with a diagnosis of Familial Aneurysm Syndrome?
Could you help us answer this question: What are the experiences of families with a diagnosis of Familial Aneurysm Syndrome?
471 views
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HBA Support
Sep 3, 20243 min read
Rebecca's Diagnosis Story: From Darkness to Light
Hereditary Brain Aneurysm Support (HBA Support) started as a personal mission but quickly grew into a community of support and information
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HBA Support
Sep 2, 20243 min read
Hope on the Horizon: HBA Support’s Research Initiatives
Here's a look at our current research initiatives, how they are bringing hope to patients and families
73 views0 comments
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HBA Support
Aug 6, 20243 min read
Andy Motch - Living with a brain aneurysm and finding a new lease of life
Knowing there are others going through the same thing provided Andy with much-needed support and understanding.
784 views
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HBA Support
May 23, 20243 min read
HBA Support Newsletter - May 2024
Welcome to Hereditary Brain Aneurysm Supports first regular newsletter
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David Salmon
Apr 30, 20244 min read
Dawn Roberts' Hereditary Brain Aneurysm Journey
Dawn Roberts, a 63-year-old Optometrist from West Yorkshire, shares here story.
114 views
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David Salmon
Feb 29, 20244 min read
HBA Support contributes to major new Genetic Alliance Report for Rare Disease Day 2024
By recording the incidence of the condition, we can gain a better understanding of its natural history and generational impact.
59 views
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David Salmon
Feb 28, 20243 min read
Deborah Johnston’s Hereditary Brain Aneurysm Journey
Deborah Johnston's story from diagnosis through to treatment and finding a community.
149 views
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HBA Support
Dec 31, 20231 min read
HBA Support's wrap-up, 2023
As 2023 draws to a close, we wanted to reflect on the achievements of HBA Support in 2023 and say a big thank you to our community - our...
16 views0 comments
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HBA Support
Dec 4, 20231 min read
HBA Support at BRAIN Conference 2023
BRAIN Conference is an annual event led by course directors Paul Bhogal, Levansri Makalanda and Oliver Spooner of Barts Health NHS Trust.
20 views0 comments
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HBA Support
Sep 11, 20231 min read
Webinar: Are Brain Aneurysms Hereditary?
A common question for people at risk of or diagnosed with a brain aneurysm is, "Is this hereditary?".
39 views0 comments
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HBA Support
Sep 9, 20234 min read
Celebrating One Year of Hereditary Brain Aneurysm Support
Celebrating One Year of Hereditary Brain Aneurysm Support: A Journey towards Hope and Holistic CareÂ
17 views0 comments
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HBA Support
Sep 5, 20233 min read
Is it Hereditary?
The idea that brain aneurysms might run in the family can be distressing, and we're here to offer guidance and support.
25 views0 comments
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HBA Support
Sep 3, 20233 min read
Should I Get Screened for Hereditary Brain Aneurysms?
In the world of hereditary brain aneurysms, screening is a common topic for those who might have a higher risk due to family connections.
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HBA Support
Aug 2, 20232 min read
HBA Targeted Literature Review
Studies have shown that people with a family history of brain aneurysms are more likely to have an aneurysm themselves.
84 views0 comments
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HBA Support
May 3, 20234 min read
Reflections on the Economist Impact Cell and Gene Therapy Conference
We need the ‘Davids’ and ‘Goliaths’ to collaborate, building an eco-system that empowers patient partnerships.
7 views0 comments
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