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HBA Support
Feb 63 min read
Exposing the gaps in care for hereditary brain aneurysms
HBA Support launches research reveals shocking gaps in screening and unequal care for people with hereditary brain aneurysms.
27 views
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HBA Support
Dec 2, 20243 min read
HBA Support Responds to NHS 10-Year Health Plan Consultation
HBA Support welcomes the opportunity to share our views on the NHS 10-Year Plan and how the NHS could better screen, support, and treat our
31 views
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HBA Support
Oct 16, 20243 min read
Finding the Hidden Connection: Menopause and Brain Aneurysms: Our Pledge to build Greater Awareness and Research
After menopause women are 2.2 times more likely to develop aneurysms than men. We pledge to create greater awareness, research, and support.
57 views
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David Salmon
Apr 30, 20244 min read
Dawn Roberts' Hereditary Brain Aneurysm Journey
Dawn Roberts, a 63-year-old Optometrist from West Yorkshire, shares here story.
114 views
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David Salmon
Feb 29, 20244 min read
HBA Support contributes to major new Genetic Alliance Report for Rare Disease Day 2024
By recording the incidence of the condition, we can gain a better understanding of its natural history and generational impact.
59 views
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David Salmon
Feb 28, 20243 min read
Deborah Johnston’s Hereditary Brain Aneurysm Journey
Deborah Johnston's story from diagnosis through to treatment and finding a community.
149 views
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HBA Support
Sep 5, 20233 min read
Is it Hereditary?
The idea that brain aneurysms might run in the family can be distressing, and we're here to offer guidance and support.
25 views0 comments
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HBA Support
Sep 3, 20233 min read
Should I Get Screened for Hereditary Brain Aneurysms?
In the world of hereditary brain aneurysms, screening is a common topic for those who might have a higher risk due to family connections.
77 views
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HBA Support
May 3, 20234 min read
Reflections on the Economist Impact Cell and Gene Therapy Conference
We need the ‘Davids’ and ‘Goliaths’ to collaborate, building an eco-system that empowers patient partnerships.
7 views0 comments
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